the last day

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I took this picture last Friday, when I was feeling pretty cocky about how I got through  fifteen rounds of radiation without suffering too much.

I had been warned that after the fifteen sessions on my chest (which you see in the photo), the worst of the rash and pain would come.  That doesn’t make sense, does it.  But it’s true.  It is so true that I am beyond miserable, with open sores and itching and pain that won’t stop.

Today is the last day for all of the radiation, the end of the daily trips to Providence.  I will complete the five “boosts”, given to the previously unradiated skin around my incision.  So far my skin has survived the onslaught.  Which is something to be thankful for.

I am bringing the radiation team (there are a bunch of them) a giant box of Sweenor’s chocolates as a thank you gift.  They were all so kind.

I will also meet with my oncologist and get my prescription for the endocrine therapy drug that will prevent the cancer from returning.  I think there’s a bone scan scheduled.

Monday I bought Banjo Man a “radiation present”.  I’d heard an ad on the radio for a store that was having a Labor Day special:  buy a tv, get one free.  So I told Banjo Man that after radiation we should go to that store and maybe get an inexpensive television for the exercise room, since we were planning on doing that eventually (sometime in September).

Well, Banjo Man has been trying to convince me that a much larger television would be perfect for the basement living area.  I have disagreed.  But surrounded by big screen televisions and an excited, wistful husband I realized the man should have any damn television he wants.

He’s been through a lot, my husband has.  These past four months have been excruciating in so many, many ways.  “We” have had cancer, not just me.

So Banjo Man (bless his happy little heart) left the store with a 55″ tv for himself— and a “free” 49″ tv for the new exercise area.

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We got to spin the wheel and won 20 tickets to Friday’s raffle.  If we win a tv I don’t know where we’ll put it!

We celebrated his Radiation Present with pumpkin pancakes at Denny’s.  And then we headed home.  It was time for my daily 2-hour nap.

So wish me luck today.  I’ve been looking forward to this day since radiation began, on July 30.  It went by much faster than we thought it would.  I’ve been told it will take a few weeks to feel like myself again.  In the meantime, I’m getting all of my pumpkin decorations out to celebrate the end of this horrible summer.

I send my love to you all.  Thank you for everything.

 

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four to go

Today I will check off another day of radiation.  After this I will only have three treatments left.  Can  you believe how quickly that went?  We can’t.

My skin didn’t become really painful until this Monday, day 13, so I was lucky.  My energy has increased in the last half of these treatments, which is not typical.  It knocked me out those first ten days, but I feel much better now.  Oh, I still take an afternoon nap and we spend evenings on the couch watching tv, but I don’t feel weak and pathetic any more.  Just lazy.

My poor armpit is taking the brunt of the radiation, it seems.  It has a lot of problems due to the surgery and the radiation burn is not helping.  If my armpit could talk it would be screaming obscenities and I would no longer be allowed in Denny’s.  Which would be a shame because this week they introduced their pumpkin pancakes.

The three of us–Banjo Man, daughter Nancy and I–have developed our routines and are getting very good at this.  First of all, the drive to the city seems to be getting faster.  And it’s a good time to chat.  Yesterday I brought a Johnny Gimble cd for the ride home because don’t we all need a little more Texas Swing in our world?

We all love the valet parking at the Cancer Center (I still can’t believe my life includes a Cancer Center).  We arrive fifteen minutes before my appointment with the massive Trilogy machine so there is time to change and grab some water and hopefully a packet of Lorna Doone’s before my scheduled time to get radiated.

I have a card that I scan when I arrive.  I love this card and feel like I’m in the FBI, scanning my ID in order to enter the secret basement room (yes, I’ve been watching MIND HUNTER on Netflix).

Each dressing room has a bench that stores the johnnies and robes.

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I have my favorite print, a white with blue checks.  I don’t use the robes with the maroon trim as it amuses me no end to make sure I match by wearing a blue robe.  Then I make my way down the hall and around the corner to Waiting Room A where I’ll find Banjo Man reading the newspaper and enjoying a cup of coffee and a complimentary oatmeal raisin protein bar.  Nancy will be on her phone and will have saved a seat for me.

Both Banjo Man and NancyK will have snagged a Lorna Doone packet from the tray in case I’m a little nauseous (which doesn’t happen as much now).  There is never much of a wait–barely enough time to drink a glass of water (I either read or dreamed that it was important to hydrate and therefore eliminate dead cancer cells with every trip to the bathroom–I have no idea if that’s true but I’m drinking at least 2 quarts of water a day just in case).

Radiation isn’t painful.  The three tech people are always kind.  But I found it hard in the beginning to bare my poor scarred chest to strangers and–worst of all–tolerate them touching it.  It has been that way from the beginning, when the nurse changed the dressing the day after surgery.  Having anyone touch my chest immediately brings tears.  There are so many different sensations in that area–pain, soreness, itching, aching, numbness–and they vary from inch to inch.  I worked hard at touching it myself, having been told to massage the area around the incision with Vitamin E oil.  That helped a lot, but like everything else with this disease, it wasn’t easy.

With radiation someone is always drawing on my chest with black markers.   They circle the “tattoos” and draw dotted lines.  I still hate it but I no longer flinch or cry at the sensation.  Sometimes they lay cold sticky pads across my entire chest before the treatments.  I eventually became used to that, too.

Every day when I walk in they ask for my name and birth date.  The other day I announced myself as “Dolly Parton”, which I thought was funny in a couple of ways.  I’m not sure they did, but I have learned that I have to make myself laugh once in a while or I’ll go crazy.

Yesterday I started the “boost” part of this, which is a direct hit of radiation to the area of my incision and about 2 inches around it on all sides.   This means my painful, itchy, red, bumpy chest gets to recover.  Oh, joy!  The doctor made a template for the boost last week and yesterday the radiation techs laid the plastic over my skin (just as you would a quilt pattern), marked the outline of the area with black marker and lined it up with the computer-generated outline on the machine.

And now I have to go, because Nancy will be here in 45 minutes and I still have to shower.  After radiation I have physical therapy and then Nancy and I will stop on the way home for an early lunch before she has to go to work.

Another busy morning here in Cancer Land.

 

 

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it’s still there

Banjo Man found this picture recently.  It must have fallen out of my grandmother’s old photo albums (they fell apart years ago but I saved all the photos) in the attic.

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Is she my great-grandmother, great-great grandmother or great aunt?

I knew that one set of my father’s grandparents lived on Public Street in Providence, so it was fairly easy to find a 1932 Providence street directory online and look it up.  And there was the name of my grandfather’s parents on Public Street!  Family stories said that my great-grandparents (the Winslow’s) grew up next door to each other.  My great-grandfather had indeed married the girl next door, Jennie McIntosh.  Several generations of the family lived in each house.  Sure enough, the street directory confirmed that the Winslow’s lived next door to the McIntosh family.  And supplied the house numbers.

In our treks to the hospital I had pointed out to Banjo Man that I remembered my father saying that his grandparents lived on Public Street, which we cross every time we go to the hospital or the cancer center.  It’s in the neighborhood.

So a couple of weeks ago we decided to see if we could find the house.  And sure enough…

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What do you think?

The roof lines on many of the houses in the neighborhood have been altered to make larger third floor apartments.  But this is the same address as in 1932.  The McIntosh house has either been torn down and rebuilt or lost its third floor and charm along the way.

Now I am searching for an address for my grandmother’s parents.  I thought I remembered someone saying the house had been torn down for a Rhode Island School of Design parking lot and the house had been “off Benefit Street”.  I’ve had no luck with the street directory, so the 1920 census is next.

Genealogy + radiation.  Who knew?

 

 

 

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number 13

I have 20 minutes before heading out the door for the trip to Providence and radiation so I thought I’d give you all an update.  I haven’t blogged for more than a week because this process has been really tiring.  All the doctors, nurses and technicians tell me it’s important to rest, to let the body heal from the daily onslaught of radiation, and that’s exactly what I’ve been doing.

I haven’t had the energy to put my dirty dishes in the dishwasher or eat anything but yogurt for dinner.  I have a baby quilt to baste but no energy to thread a needle.

But…things are definitely looking up!  This past weekend my energy returned a bit and my appetite revived itself from time to time.

I even drove Saturday morning.  Let me repeat that:  I even drove my car.  Banjo Man didn’t even flinch when I announced I was heading three miles down the road to the gift shop to buy a hostess gift.  I hadn’t driven since MAY.  I even went to the ATM machine.  And then I came home and took a nap, but what the heck.  I DROVE.

Our favorite Austin musician was in town and we had tickets to his show on Friday night.  He was joined by Cindy Cashdollar, dobro and lap steel guitar queen of the universe.  I stayed home–there was no way I could go to a show that starts at 8:30 pm plus I am still leery of being in crowds and getting bumped–but Banjo Man went by himself and had a great time.

On Saturday we went to a dinner party!!!!  A dinner party!!!!  Our Thanksgiving group met at Ken and Ginny’s for a beautiful evening on their deck.  My mother, brother and sister-in-law joined us, so the evening was a very special one.  I drank half a glass of Prosecco.  It was delicious.

I tried to take a picture.

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I had to try on four tops before finding one that didn’t aggravate the rash on my chest.  I spread hydrocortisone cream and Calendula salve on my chest throughout the evening and that worked.  I’m starting to itch and blister, but after today there are only seven treatments left.

And now I have to go!  Banjo Man is waiting for yet another drive north.

 

 

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number 8

Today is the 8th radiation treatment.  I’d like to announce, “So far so good!” but I’m afraid to jinx it.

Here I am trying to take a selfie in the mirror of the radiation department’s dressing room.  Such a pretty outfit!

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Here’s my hero in the radiation waiting room.  He has driven me every day this week.

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We’ve made it fun.  Monday we stopped at Cracker Barrel on the way home and pretended it was the Cracker Barrel restaurant in Billings, Montana and we were on a road trip.

Banjo Man was especially happy with the open-faced roast beef sandwich dinner.

On Tuesday we did a little genealogy sleuthing, which I’ll write about tomorrow.  We took the back streets from Providence to Cranston (only got lost twice) and ended up at “The Big Cheese & Pub”, which I’d seen online.

Did Banjo Man like his Italian meatballs and sausage lunch?  Take a wild guess.

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I ordered a meatball calzone, which was the biggest calzone I’d ever seen in my life.  I managed to eat 1/4 of it and we took the rest home to freeze for future meals.  Banjo Man cannot wait to go back there next week…and every week for the rest of his life.

Wednesday I was too tired to stop for lunch, so we headed home after a quick stop at Trader Joe’s and little hot fudge sundaes at McDonald’s.  It is painful to hold my right arm over my head for the radiation treatments so when I feel really sorry for myself (and, I admit, a little teary) during those times I try to think of pleasant things.  Wednesday’s “happy thought” was hot fudge sundaes.  They were another road trip snack, around 3 pm, so Banjo Man and I could rally for two or three more hours of driving.

My “happy thought” during yesterday’s treatment had been a particularly embarrassing moment for me at the airport parking exit after picking up Ben, Amber and John in June.  It struck me funny all over again to the point where I had to bite back the giggles while the machine was hovering and beeping and zapping my chest.

Yesterday we stopped at the Rose Point Cafe, near Wickford, for lunch.

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Marinated beet Reuben sandwich.

Poor Banjo Man thought the sign said “marinated beef“.  But he enjoyed the sandwich anyway.  I ordered it, too (I love beets) and took 1/2 home.  My appetite (and my energy levels) are dropping daily.

The doctor told me I was to do nothing but rest from now on.  There will be 20 treatments, not 22, so I’ll be done on August 28th, which is also the day I meet with the oncologist to start the next phase: endocrine therapy for five years.  That’s the “good stuff”, folks, that should keep the cancer from returning.

According to the Oncotype statistics, because of my low score, radiation and a future with endocrine therapy, I have a 98.2% chance of surviving nine years.  Let’s give a cheer for medical science!!!

 

 

 

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did i do it all wrong?

I just read an article about the birthday of a 107-year old woman, Louise Jean Signore, in the Bronx, New York, on July 31st.  She was born in 1912, the same year of the Titanic disaster.

When asked why she’d lived so long, the article explains:

Proud of her Italian heritage she believes good home food and lots of fruit and vegetables without soda or cake all played a part in her longevity. But above of all all else, Signore who lives alone believes one other key factor has reduced the stress in her life massively and kept her alive. 

‘I think the secret of 107: I never got married. I think that’s the secret,’ Signore told CBS.

Oh, dear.  I ate cake, I drank soda and I’ve been married for almost 49 years.  The only thing I did right on that list was eating good Italian home-cooked food.  I hope that’s enough!!!

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I love making my father’s meatballs.

 

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august first, oh happy day

It’s very odd to be celebrating the first day of August.

For the past ten years, the beginning of this month meant that I would be returning home to Rhode Island in three weeks, five weeks, six weeks…and, eventually, two months.  For the past three years, August 1st marked the halfway point of my time at the lake.  I was never all that thrilled with August 1st.

I would then try to cram in as much fun as I could every single day.  My calendar was oh-so-happily filled.

So it is strange to be so happy that August is here and summer is half over.   Bring on September, please!  I need to say goodbye to humidity and the pain it brings.  I want chilly air and pumpkins.  I need radiation to end and college football to begin.  Oh, how I need college football Saturdays!

#chili

Speaking of chili, I wonder if Banjo Man remembers last Opening Day when he criticized my chili and I told him that I would never make it again and he could make it himself for the rest of his life?

I shall keep you posted.

 

 

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a birthday for banjo man

The mystery gift was a hit!

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This is a ZVOX AV155 AccuVoice TV soundbar with 6-level “dialogue booster”.  The “booster” part is the important thing:  it lifts the dialogue louder than the background noise.

Here’s what the description on HSN said:

“ZVOX AV155 AccuVoice TV Soundbar w/6 Level Dialogue Boost and Remote.  Hear every word clearly. This AccuVoice soundbar uses six levels of dialogue boost to make voices clear, even at low volumes — you can actually tailor the sound to match your ears. With three full-range speakers, this soundbar uses hearing-aid technology to isolate voices and amplify them above background noise for greater clarity. It even lowers the volume of loud commercials. One-plug connectivity makes setup a breeze, and you can connect a second audio source, like your smartphone, to listen to music. It’s TV the way you want to hear it.”

And it works!  My husband was amazed and thrilled.  Shock and awe, people!

We celebrated with a strawberry shortcake cake with daughter Nancy and later on watched the finale of “The Bachelorette”.

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Yesterday was a busy–and  hot–day.  We’re in the middle of another little heat wave (hey, it’s summer!!) and my first trip to the city for the radiation program started.  It was only a trial run, plus a bunch of x-rays, but I met the staff who will be treating me for the next month and learned the ins and outs of dressing rooms, waiting rooms and treatment areas.  My machine is called the “Trilogy”.

That made me smile.  After all, I’ve written enough of them.

 

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birthday card for banjo man

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I just wanted to share this.

 

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odds and ends on a quiet day

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Laid out on the dining room table.

The baby quilt project is still coming along.  It’s a sweet quilt and I hope it will be loved and used.

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“Ruth’s” is a shop deep in the heart of Cranston that has been in business since 1954.  They do everything transaction by paper, with no computers.  It’s quite a process, especially since a huge part of their business deals with women who have had breast surgery and cancer.  A number of very lovely and kind women work here, but I’ve learned to allow extra time for filling out the insurance forms for every purchase.  If they don’t carry what you want, they’ll order it.

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These charging stations are everywhere at the hospital and surrounding medical buildings.  It looks like a great idea, but I’ve never seen anyone using them.

Starting tomorrow, things get busy around here until September.  Radiation is daily and I’ll be glad to start, because the sooner it starts the sooner it’s over.

I’ve convinced Banjo Man that I will be well enough by mid-September for him to leave me for a few days and attend his 60th high school reunion in Nebraska.  After that son Will arrives for a week.  Lots to look forward to.

October will be here before we know it and it will be time to unpack the velvet pumpkins and celebrate the fall, my favorite time of year.

Yes, I know it’s only July, but a girl can dream!

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