lucky day

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I won one of the raffle baskets at the quilt show!  It’s a huge basket of notions and quite a haul of goodies.

My favorite notion?

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I’ve wanted Wonder Clips for a long time.  When I am piecing 120 blocks and need to put them into piles of ten to make it easy to count?  Bring on the Wonder Clips!

And what about these?

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I do so like pins.  Especially when they’re “pretty”.  Hah!

Hilariously, Banjo Man stood next to me and examined every single thing I pulled out of the basket.  He especially liked the quilting books (three of them!) and a pin cushion shaped like a sewing machine.

We are headed north today for a follow up physical therapy session and then to the cancer center for a check up with the radiologist.  I expect both sessions to go well.  I wouldn’t mind getting a few answers as to the source of the lingering pain and what to do about it and how long it’s going to last, but I’ve learned that no one offers much information.

It’s good to have Banjo Man home and I’m glad he’s driving me today.  I think I could do it myself but we’re still being cautious.  Which is fine with me!

 

 

 

Posted in family, quilting, rhode island, the cancer fight | 3 Comments

surviving the red eye

I met Banjo Man at the airport at 9:15 this morning.  He was happy to see me and very, very tired.

“I will never fly Delta or United again,” he declared.  “It was the worst experience I’ve ever had.”

Extremely small seats, the last seats on the plane in the back and very annoying seat mates made it impossible to sleep.

He is napping now.

But his trip to the lake was wonderful.  He told me he’d eaten 25 meatballs.  Huh?  I didn’t know I’d frozen so many.  And I didn’t know he counted meatballs, either.

The chess set made of farm machinery is now proudly displayed in the office of the lake house.  I hope there will be many, many chess games played there next summer and in the years to come.  It was a project dear to my husband’s Nebraska heart and he is immensely proud to have it finished.

It was a long five days here without him, but I accomplished a lot of decluttering in my office.  Nothing had happened in here for many months, except for the piles getting higher.

My grandson “Face Timed” me last night.  A first!  We beamed at each other and I admired his new short hair cut.  I hope we get to chat like that again.

My favorite song of the weekend turned out to be a Bonnie Raitt number, “Home”.

Enjoy.

 

Posted in family, music, rhode island | 1 Comment

quilting turkeys and more

Did I go to the quilt show?  Yes!  I stayed less than hour (and took a three-hour nap when I got home) but I drove myself to Westerly on a cool, sunny day.  Power was out in two towns along the way, so the traffic lights weren’t working and many stores along the road were dark, including Wendy’s and the liquor store.  I saw a lot of trucks from National Grid, though.  They were clearly on the job.

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I loved this.  It was so cleverly done.

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Such a brilliant use of fabrics.

Here are more pictures:

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Stunning.  I can’t imagine making this and I am in awe.

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Check out all the little strings of fabric sewn together.

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This reminded me of lakes and mountains.  I loved it.

The man with the gorgeous vintage sewing machines was there.  He’s always a hit with the quilters.

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I bought raffle tickets and resisted buying fabric (which was surprisingly easy).  Then I was out of there, off to buy Band Aids and batteries at CVS before heading home for a three-hour nap.

One of these days I will have my stamina back.  I’ve been warned it can take 3-4 months after radiation ends to be back to normal.

So…I am happy to have a comfy couch and lazy afternoons.

Tomorrow morning I will head to the airport and retrieve Banjo Man, who is taking the red-eye tonight from Spokane.  Hurray!

 

 

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the mighty wind

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We had a surprise storm Wednesday night that lasted through much of Thursday.  I woke up to hear the radio weatherman exclaim, “It should have had a name!”

Yes, the storm was worse than anyone thought it would be and had been big enough to be called Harold.  Thousands of people lost power (and many still don’t have it) all over our area, but so far I’m totally plugged in and operating fine.

I watched that huge limb fall onto the old basketball court yesterday.  I’d heard a strange sound and turned to the window in time to see it fall.  It looks like most of the tree is on the ground.  The picture doesn’t do it justice.

During lulls in the wind I ran outside and dragged other branches from the driveway.  They weren’t too big to move but no one would have wanted to drive over them.

Banjo Man is at the lake.  He is meeting with clients and helping brother George close things up for the winter.  He has defrosted meatballs and bags of frozen sliced peaches, so I like to think I’m there in spirit–or at least at the dining room table.

While he is partying 3000 miles away I am binge-watching “The Looming Tower” on Hulu when not decluttering my office (totally out of control) or throwing out clothes that remind me of last summer.

This weekend the Ninigret Quilters hold their biennial quilt show and I always go.  Two years ago I won a huge basket of fabric and goodies at the raffle, which was exciting (especially since I was at the ER with my mother all day and Banjo Man had to go pick up the basket for me).  I’m debating about going by myself this morning.  Driving is tiring, but I can come home and take a nap.  The show isn’t all that big and walking is good for me.  90% of Westerly, where the show is to be held, was out of power yesterday, but an announcement on their Facebook page declares that they are up and running this morning.

And speaking of wind, here is one of my favorite funny movies.  I just bought a new copy and because–thank God–Nebraska isn’t playing football tomorrow I might settle on the couch with some hand-stitching and enjoy a few giggles.

mighty wind

 

 

 

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my cup runneth over, yes it does

No, I haven’t gone biblical on you.  My cup indeed–literally and figuratively–is full.

Because, you ask?

I was finally able to get my prosthesis yesterday morning.  A kind saleswoman from “Ruth’s”, corset shop extraordinaire, fitted me while Banjo Man ate breakfast at the cafe next door.

Who knew a $300 blob of silicone and two lovely bras would change my life so nicely?

I am filled with joy.  Seriously.  Pun intended.

I haven’t blogged about this particular issue, unwilling to make my male readers squirm (and I’d advise you guys to stop reading and go on to something else on the internet), but let’s just say it isn’t easy wearing a poly-fil insert that rides up a couple of inches higher than the real, gravity-driven thing.  I even made inserts of glass micro beads to add some weight.  That helped a little, but not much.  At one point I used small, smooth flat rocks from the lake (yes, I have a little collection here to remind me of summer).  The comfy “Knitted Knockers” served their purpose after surgery but were not cutting it in the reality of wanting to look and feel normal again.  I had begun to hate the very sight of them.

And then there’s the balance problem.  Not that I was Dolly Parton or anyone endowed with extra curves, but a little weight makes a difference.  After surgery I lurched to the left and walked the house like Frankenstein.  I was constantly reminding myself to stand up straight and not stagger sideways.

I opted out of reconstruction (more surgery??  Are you kidding me???!!!), but I didn’t want to feel self-conscious either.  I don’t really think that anyone is eyeing a 67-year old woman’s chest for a cheap thrill, but I longed to feel balanced again and to look nice in my clothes.  I often think it would have been easier in the long run to have both breasts removed and then I wouldn’t have to wear any undergarments or silicone at all.

I detest the shirts (prints? gathers? ick!) I wear.  I want my t-shirts back.  And my pretty knit sundresses.  I recently ordered a couple of sweaters with interestingly draped necks that will hide my flatness when I don’t feel like gearing up.  Pretty scarves will come in handy, too.  But I wanted options.  What woman doesn’t?

I’d had to wait for many weeks after radiation in order to get a prosthesis.  You have to be completely healed from radiation and you can’t get one before radiation because of the swelling from the surgery.  I’d been waiting all week to drive up to the city but the weather had been too awful to make the trip.  And I was getting nervous about the whole thing.  What if I cried?  What if they didn’t have my size and had to order it?  What if I got tired before I found what I needed?

So yesterday I wore my cowboy boots for courage.  But the fitting went better than I expected.  I tried on three “forms” before finding the one that matched, and four or five bras before finding a couple of comfy ones.  I wore my new “body” out of the store and pranced over to the cafe where Banjo Man was seated at the counter finishing his breakfast and reading the paper.  I perched on the stool next to him and opened my cardigan sweater to reveal a fitted cream turtleneck worn especially for fake-breast-testing.

“Stare at them,” I demanded, pointing my breasts in his direction.  “Go ahead, stare!”

He put down the paper and did as he was told.

“I can’t tell the difference,” he pronounced, good husband that he is.  But I could tell he was impressed.  He looked back up to my face.  “Are you happy?”

“Very happy,” I assured him.  “The extra weight is heaven and feels so good.  It was like wearing a pair of shoes where one fit and one was floppy and miserable and now I have two shoes that fit and I am so comfortable!”

And then I started crying.  Just a little.  Into a Kleenex.

So…one more step into the Land of Normal.  Tomorrow I’ll tell you about another one.  Fear not, it has nothing to do with missing body parts.

 

 

 

 

Posted in family, rhode island, shopping, the cancer fight | 5 Comments

heading east and home again

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Flying into the sunrise.

I left Austin yesterday morning (Tuesday) at 6 AM.  The plane was dark and quiet, which gave passengers a few more minutes to snooze after early morning trips to the airport.

I think the above photo would make an interesting quilt.  I’m tempted to try.

And then a while later…

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I wonder what all that water is down there.

And lastly…

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Here comes the sun.

Will and I flew to Austin last Monday night.  A few delays in Baltimore meant we arrived at the condo after 1 AM.  Thank God I slept on the plane or I would have been delirious.  Will jogged down to the cafe and returned with chicken quesadillas for our bedtime snack and then we fell into our prospective beds.

It was 97 in Austin the next day.  And the day after that.  And the day after that, etc.  I stayed in the condo and read and sewed and watched tv while Will was at work.  It was lovely.

Ben, Amber and the Funny Grandson arrived for dinner Wednesday night.  We went out, of course, which was great fun.  I’m always grateful to be together in Austin again.  My little family is a cheerful bunch.

Friday was the FG’s Early Birthday Party.  He would spend the weekend and not return home until Sunday night, so this Party Grandma was ecstatic to have him around for such a long visit.  We walked to the cafe every morning for pancakes and bacon and plenty of conversation.  We watched football, including the pregame shows.  We read in bed at night, even though I always fell asleep before he did.  We played lots and lots of UNO and even treated ourselves to root beer floats before the Nebraska game.

He didn’t want to go home.

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Lego cars make him happy.

I even threw a couple of roasts into the crock pot for our family dinner party Friday night.  Unfortunately 8 hours in the crock pot was not long enough to cook them to the “fall apart” stage.  I think the “high” on that appliance has broken and we’re left with “low”.  Or else I was cooking a very old steer (it would take six more hours the next day to tenderize that meat).

Despite all that trouble, I was thrilled to have had enough energy to put something in a crock pot.  A good feeling!

Other than that I was pretty much useless.  Will wanted advice about redoing the living room, so on Monday–when it was a shocking 78 degrees (a cold wave!)–we drove to a couple of furniture stores to get ideas.  We even remembered to take along a tape measure, which definitely came in handy for eliminating possibilities.

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You have to love the metal bats.

So I am back in Rhode Island with a very happy Banjo Man.  Tonight we will have a “Survivor” marathon to catch up on the new season.  The weather is cool, windy and rainy–the opposite of Texas–and it feels pretty darn good to wear a sweater.

I’d had my doubts about going to Texas.  I would have cancelled it if not for my excited grandson.  He loves the tradition of Early Birthday and we always have fun.  But both Will and I were nervous about how much energy it would take for me to make the trip this year.  I worried the lymphedema would rear its ugly head due to flying (it didn’t).  And I thought I’d be too tired to have fun (I wasn’t).  In fact, I think the new medication (Arimidex, to keep the cancer from returning) gives me a little extra zip.  I’ve had more energy since I started taking it and, believe me, I’m grateful for any little bit of energy that comes my way.

Maybe in a couple of days I’ll dust off one of the crock pots and make a soup.  Now that would be progress!

 

 

 

 

 

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a mayflower kind of day

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Will and Banjo Man with the recently restored Mayflower II behind them.

It was a beautiful day for some seafaring history at the Mystic Seaport Museum.  We hadn’t visited for almost fifty years and Will hadn’t toured the village or the Captain Morgan (last surviving wooden whaling ship) since a fourth grade field trip.

it was good to have Will home for a few days.  We spent a morning at the Patriots Hall of Fame, scarfed down chowder and clam cakes in Galilee while the rain poured down, installed the corner wall mount for the new television and sorted through storage bins.  The days went by too quickly.

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Where they made the barrels for the whale oil.  My 8x  grandfather was a cooper in Bermuda in the 1700’s.

The guys toured a lot of buildings.  I rested on a lot of benches!

We finished the day with a 90-minute ride in the Mystic estuary on a steam-powered boat.

IMG_3546I saw a yacht you can rent for $70,000 a week.  It sleeps 7 so gather your friends together for a “Below Deck” experience.

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Banjo Man can’t wait to return.  We’ll be touring the upcoming Turner exhibit there with Barbara and Rod in a few weeks.

I’m working on my stamina so I can keep up.  One baby step at a time!

 

 

Posted in family, rhode island, travel | 1 Comment

49 years but who’s counting?

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September 26, 1970

Oh, we haven’t changed a bit!  LOL!!!

My hair is brown.  Banjo Man’s hair is…there.  And I certainly can no longer fit in my size 5 wedding dress!  We turned into parents and then grandparents.  And had many, many adventures–good and not so good–together.  Always together.

But love endures, as they remind us on the Hallmark Channel.  We made it through 49 years and life is good!

So we are going down to the ocean tonight and will sit on the second floor deck at Champlin’s while eating seafood and watching the fishing boats.  Will has arrived and will be joining us in our celebration as he’s anxious to leave all that Texas BBQ behind for a few days and instead eat oysters and whatever fresh fish appeals to him.

It’s going to be nice evening, 75 degrees and blue skies over the water.  Happy Anniversary to us!

 

 

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home alone

Banjo Man is partying in Nebraska this weekend, so I am home alone and, I will admit, have felt a bit lonesome since his Wednesday morning departure.  I am used to his chatter.  He cleans up the kitchen and takes out the garbage and drives me places and goes grocery shopping and fixes fruit snacks and assures me five times a day that I look better.

You can understand why the man needed a vacation.

But today I am luxuriating in the silence and pondering the possibilities of long weekend of puttering with my various sewing projects and eating chicken salad sandwiches.   So I am content.

I am making a couple of reversible Halloween banners to give to my two favorite young mothers.  I saw one of these at the Sew Expo and had to make it.

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I’ve had a wonderful time figuring out how to do this.  Trial and error with pinking shears (once I found them)!  And what to use for the inside?  Lightweight interfacing, batting or heavy fusible interfacing?  I tried each one.  The heavy fusible won.  I tore apart my sewing closet to find the various options, which was another fun thing to do.  Driving the car still hurts so I ordered seam binding on Amazon when I normally would just drive down to Walmart (I am saving all of my driving energy for picking up Banjo Man at the airport Monday night).

Today Amazon is delivering new HDMI cords (I called Verizon Fios to replace my SD boxes and was informed they no longer have such dinosaur-like things so I had to go get HD boxes and somehow I ended up with a new router, a $200 Visa gift card and a cheaper “bundle” price, but please don’t ask me to explain how) so I can set up the new tv’s and a standing floor lamp to replace my 25 year old bedroom wall lamp that finally died on Thursday.

Phew.  That was a long sentence.

I’ve learned to do brainy things in the morning because things fall apart after 2 PM.  I’ve been assured that this is pretty typical after radiation, that it takes quite a while for the body to heal itself no matter how much I complain.

It is a beautiful day.  This is supposed to be the last warm (80’s) weekend of the summer.  I just picked a couple of dozen cherry tomatoes and one beautiful zucchini from our mini-garden.  I fed the chipmunks and turned on ESPN’s College Game Day and made another mug of coffee.

Bring on the weekend!  

 

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changing the paradigm

Anyone remember Disney’s “Pollyanna” movie from way back in 1960?  As a 9-year old, I was at first annoyed by Pollyanna’s relentless optimism.  But it was a good movie, it really was.  And I became intrigued with Pollyanna’s creative thinking.  I tried doing it myself for a while, for my own amusement.  But I started to annoy myself and gave it up a few weeks later.

I’m sure my family was relieved.

Which brings me to a week ago, when I stopped feeling sorry for myself (well, not completely–my chest was still painfully decomposing) and got a grip.  A semi-grip.  As I explained to Banjo Man, I’d spent months referring to this time as the “Summer From Hell”.   It had occurred to me–while tearfully sipping my second mug of coffee and thinking about my miserable situation–that I wasn’t being fair.

It actually had been the “Summer That Saved My Life”.

Oh, undoubtedly a lot of very unlucky things had happened:  the tumor being three times the size the doctors thought it was, the malignant lymph nodes, the cancerous involvement of skin, the aspiration in the operating room, the many complications after surgery, the onset of lymphedema and the intense skin damage after radiation.

Shit bad luck.

BUT, as I told Banjo Man, I’d been lucky where it counted:  the Oncotype number, meaning no chemo.

AND…
Two hours after our first visit to the breast cancer surgeon’s office, as I held my mammogram test results and wept with fear over what it all meant, Angela called me to say she was going to get us through this.   Which she did, getting me into tests faster than the speed of light, relaying and explaining test results the minute (I swear) the pathologist read them, prescribing much needed medication and being with us through intense, emotional and often confusing “team meetings” with the breast cancer physicians.   She researched the Oncotype statistics and studies for stage 3 cancer and insisted I have the test despite the other doctors’ objections.  She had my back, as she’d promised she would. How lucky am I?!?

AND…
I’d been surrounded and cared for by a lot of kind and compassionate medical people.  I cannot stress that enough.  Kindness is so important when you’re terrified and falling apart.

AND…
I had so much love from family and friends.  I don’t know how to tell you all what it meant to me.  I was so grateful…and awed.  I am weepy now just thinking about it.  The cards and gifts and prayers and many, many kindnesses have been so appreciated.  You have no idea how much.  

AND…
I had Banjo Man taking care of me.  How lucky am I?

So while it really was a Summer From Hell in so many ways, it saved my life.  And I have stopped being angry and resentful (most of the time) and am looking ahead to being normal again.

I have decided I no longer have cancer.  It’s been cut out of me and burned out of me, right?  A brutal cure.  According to all of the medical research and statistics, the five years of Arimidex should keep it from coming back.  I wanted to ask my oncologist when I could say, “I had cancer” instead of saying, “I have cancer”, but she was so fixated on my radiated chest I lost the opportunity to discuss it with her.

It’s not completely over.  I have one more physical therapy appointment.  A follow up with the radiologist in October.  A meeting with the oncologist in December.  A check up and mammogram with the surgeon in February.  I will be dieting and exercising and wearing my compression sleeve and doing “Yoga For Breast Cancer”.  I’m a little nervous about this new medication and its possible side affects, but I’ll deal with whatever comes next because nothing involves a scalpel.

The “Summer That Saved My Life” is over and it is time to eat pumpkin pie and break out the tequila.  I wish you could all celebrate here with me.

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My new dish towel, because in my world you can’t have enough dish towels.

 

 

Posted in a more pie opinion, family, friends, rhode island, the cancer fight | 5 Comments